The Potsdam Fibromyalgia Support Group is now the Fibromyalgia /Ehlers-Danlos Support Group: The F-EDS Support Group

Facilitator: Leslie Russek, PT, DPT, PhD, OCS
Associate Professor, Clarkson University Physical Therapy Department and
Physical Therapist, Canton-Potsdam Hospital

The F-EDS Support Group is on SUMMER HOURS: First Tuesday of the month, 6:30-7:30 pm. The next meeting will be Tuesday, July 2nd, 6:30-7:30 pm. The topic will be:

"Positive Thinking and Pleasurable Activities."

In our Supporters meeting in June, we discussed how important it is to keep pleasurable activities in our lives. Sometimes we may need to change how we do things (have raised flower beds instead of a full garden), or we can come up with new things to enjoy together (go to a concert or farmers' market). And sometimes our supporters might benefit from pursuing hobbies on their own, without guilt about leaving us on our own. We again encourage supporters to come to our meeting, but this is also a chance for people without supporters to connect. We will have light desserts to celebrate 4th of July and encourage informal conversation and networking. Everyone is welcome to attend our support group meetings. We meet on the 2nd floor of Clarkson Hall at 59 Main St., Potsdam.

Join the Potsdam Fibromyalgia Support Group on Facebook!

Useful links and resources: (links to on-line resources are given in teal)

2016 American College of Rheumatology Diagnostic Criteria for Fibromyalgia. The 18 tender points are no longer used for diagnosis of FM. This self-administered questionnaire walks you through the diagnostic criteria.

Employees with Fibromyalgia: This resource is from The Job Accommodation Network (JAN), supported by the US Dept of Labor, Office of Disability Employment Policy. This document has useful suggestions for making accommodations in the workplace.

Employees with EDS: This resource is from The Job Accommodation Network (JAN), supported by the US Dept of Labor, Office of Disability Employment Policy. This document has useful suggestions for making accommodations in the workplace.

Talking With Your Doctor: This brochure from the National Institute on Aging is intended for older adults because they tend to have more medical concerns and tend to take more medications – making it an excellent resource for people with FM.

Links to useful resources

  • Trigger Point Resources: www.triggerpoints.netwww.myofascialtherapy.org/symptom-checker
  • Tips for supporting someone with fibromyalgia 
  • Coping with Chronic Illness  From the National Institute of Health, with very good information about the challenges of dealing with chronic illness, and suggestions for how to best do so.
  • Dysautonomia International information on Postural Orthostatic Tachycardia Syndrome (POTS)
  • An excellent self-help guide for managing fatigue, from UK National Health Service: Managing Your Energy
  • Support Group meeting times:
    Summer & Winter hours: the 1st Tuesday of every month (except for holiday weeks). 6:30-7:30 pm May-Sept, Noon-1 pm Oct-April.
    Location: Clarkson Hall at 59 Main St., Potsdam, NY. Follow the signs to the meeting room.
    For information about the Potsdam F-EDS Support Group, contact the Canton-Potsdam Hospital Physical Therapy Dept. at (315) 261-5460.

    Contact the Potsdam Group Leader at lrussek@clarkson.edu.

    Clarkson University 
    Canton-Potsdam Hospital 
    Clarkson Physical Therapy Department

    If you have comments or suggestions, email me at lrussek@clarkson.edu