Hypermobility/Ehlers-Danlos Syndrome Educational Handouts

Handouts created by Prof. Russek, unless stated otherwise.

General Information

  • "Overview of Hypermobility Spectrum Disorder": Overview of HSD/hEDS signs and symptoms, diagnosis and PT management.
  • "Why Zebras are not Horses": leaflet explaining why people with HSD cannot be treated the same as everyone else.
  • HSD in children and adolescents: Overview of issues that can present in children and teenagers with HSD/hEDS.
  • Checklist of physical therapy treatment approaches for HSD/hEDS. It is sometimes helpful to know what a PT might be able to help with.
  • List of HSD and POTS disability/accommodations resources. Resources with information about accommodations and disability for people with HSD/hEDS and POTS.
  • Chronic Pain Partners surgical planning booklet. Excellent patient information for EDS patients preparing for surgery.
  • Self-Care Strategies

    Pain Management

    Exercise Handouts

    Managing Dysautonomia/Postural Orthostatic Tachycardia (POTS) and Mast Cell Activation Disorder (MCAD)

    Helpful HSD/EDS Links for both patients and health care providers. (These are not handouts created by me, but are helpful links):

    Postural Orthostatic Tachycardia Syndrome (POTS) resources. POTS is common in HSD, and not always diagnosed. It presents as severe fatigue, poor tolerance to exercise, headaches, heart palpitations, anxiety (even panic attacks), brain-fog, fainting, nausea, GI problems and more.

    Mast Cell Activation Syndrome/Disorder (MCAS/D) resources. MCAS is also common in people with HSD/EDS. MCAS presents as migraines, hives, itching, flushing, severe allergies, irritable bowel, chronic fatigue, chronic pain, medication sensitivity, chemical sensitivity, brain-fog and more.

  • Suggestions for preventing and protecting injuries in Aikido training.